Oh my, I woke up ready to write a post and was thrown for a loop in the comment section by someone I inadvertently offended. BECAUSE of my poor fried brain which makes it difficult for me to read anything lately, especially the last several days.
God, I can’t concentrate on a written piece of writing if it’s more than about 3 sentences lately. And so I did not carefully read some comments, thought the woman was friend of mine because her name is virtually identical (one extra letter) and therefore spoke to this new person with a familiarity that offended her. And she went off in a huff. Don’t know if I’ll see her again or not. I suppose it doesn’t really matter. I don’t think she understood the culture of the blog in any case, but it still hurt me because I didn’t mean to offend. And I try so hard to make this a friendly place.
Anyway, with that off my chest, I will write the real reason for this post.
My awesome new physical therapist has been closely observing me and she realized she needed to measure my laying, sitting and standing blood pressure. She suspected I have orthostatic hypotension. And she was right.
Now, any of you who have been on neuroleptics (antipsychotics) or the old tricyclic antidepressants may know what this term means technically. It’s when your blood pressure drops upon standing. These drugs can cause this as a side effect. Usually with these meds it’s relatively mild and people function. For me I’ve always had low blood pressure, it was a side effect I could not tolerate at all on the tricyclics and with the neuroleptics it was a pain in the ass.
Anyway now I have it really really bad even though I’m off all the offending drugs and the orthostatic hypotension may be making my underlying condition worse my PT thinks. I cannot walk and get dizzy and very nauseous. She says all these symptoms can be caused by this condition, while understanding that it may simply be making the symptoms I already have from the withdrawal worse.
The cure? Well…for now it just means I need to sit more often. I KNEW this myself a while back without this information and we went out and bought a recliner because it’s very hard for me to sit because I’m so weak, but I also knew that at this point sitting amounts to EXERCISE for me and I should be doing it. Well my PT agrees and I need to start sitting as upright as possible at least an hour a day. Right now as usual I’m laid back on the couch with a pillow propping me up and my laptop in my lap. I got this way because the drugs made me so sick sitting was just too much, but if I don’t want to become 100% bedridden I need to start sitting up daily a bit at a time. Clearly, I intuitively understood this, and so bought the recliner. I’ve been sitting in it about 3 times a week when I feel a bit better then usual. But I didn’t know exactly what I was intuiting and again, I’m profoundly grateful I have a PT telling me what I need to do, since I was conflicted about whether forcing myself to sit when it makes me feel sick was actually good or bad and now I know I must do it.
So my exercises now include stuff while laying on my bed propped with pillows and moving about my limbs very gently and SITTING at least an hour a day!! That is exercise for me in my deconditioned state.
She told me since the chemical injury is continuing, I will perhaps not get hugely better for a while, but we can at least stop my losing more functioning. I again, am so profoundly grateful to have somehow drawn this woman into my life. She is a godsend.
Oh, ironically enough when I did the research on orthostatic hypotension I discovered they treat it with BENZODIAZEPINES!! Ironically, the only drug I still remain on. It’s apparently not doing the job…what a surprise! It horrifies me that they get people addicted to benzos for yet another condition which responds to natural treatment. In this case simply moving my body a bit more!!
By the way my standing blood pressure was 80/40. Way, too damn low. Amazing I’m not passing out. And indeed my PT told me to be very careful.
I’ve always had low blood pressure so it’s not too surprising that this should hit me.
Okay, I will post this and now that I’m properly awake, I’ll go sit in my recliner!