Survey on Antipsychotic Medication Withdrawal – Please Take And Share


I’m very excited to announce the launch of a survey with Maastricht University on antipsychotic medication withdrawal. I’m working with Dr. Jim van Os, Dr. John Read, and Dr. Sandra Escher on this international survey, just released in English with translations to additional languages coming soon. – Will Hall

The survey aims to improve mental health services by better understanding medication withdrawal. Service users/survivors/consumers from around the world gave input to the survey development. The study is sponsored by Maastricht University in the Netherlands; co-sponsors include the International Institute for Psychiatric Drug Withdrawal.

You can take the survey if you have you ever taken antipsychotic medication (such as Zyprexa, Seroquel, Abilify, Risperdal, Haldol, Geodon, Stelazine, and others), for any condition or diagnosis, with or without other medications;  and you have ever stop taking antipsychotics, or tried to stop taking them. You also need to be 18 years or older at the time of taking the survey.

Please take and share the survey here:

www.antipsychoticwithdrawalsurvey.com

editors NOTE it’s a long survey…but one can come and go and not do it all in one sitting. (as long as you have cookies enabled on your browser) your answers come back when you do!

and there is a Facebook page here

Press release here:

Media Release: Maastricht University Launches

Antipsychotic Medication Withdrawal World Survey

Date: June 1, 2018

Contact: Will Hall +14132102803  —  will.hall@maastrichtuniversity.nl

Maastricht University School for Mental Health and Neuroscience

PO Box 616, 6200 MD Maastricht The Netherlands

Maastricht University School for Mental Health and Neuroscience, The Netherlands, today launched a survey for patients who have withdrawn or tried to withdraw from their antipsychotic medication.

The survey is online at http://www.antipsychoticwithdrawalsurvey.com. Translations are also available soon.

“How patients discontinue antipsychotics is not well researched in the clinical literature,’ says Will Hall, lead researcher and PhD candidate at the School for Mental Health and Neuroscience. The study will gather data across multiple countries to better understand if, when, and how to best withdraw from antipsychotics such as risperdone and haloperidol, which in some patients can cause severe adverse side effects including diabetes, heart disease, and neurological disorders.

Antipsychotic medications are a class of drugs prescribed primarily to treat psychosis, a debilitating condition which affects more than 21 million people globally according to the World Health Organization. In recent years their prescription has expanded to include anxiety and depression, and antipsychotics are today the third most prescribed class of psychiatric medication. 1.6% of the US population takes antipsychotic medication, according to a 2017 review in the Journal of the American Medical Association (1). Commonly prescribed antipsychotics include Abilify, Seroquel, Geodon, Haldol, and Risperdal.

Lead researcher Hall was himself diagnosed with schizophrenia; he took antipsychotics before discontinuing the drugs and later resuming work. He says the survey meets a need shared by clinicians, patients, and family groups to better understand medication risks and benefits. “One size does not fit all when it comes to psychiatric treatments; our aim is to expand the research base to inform better clinical practice.”

Dr. Jim van Os, Head of the Division of Neuroscience at Utrecht University Medical Centre and a member of the Royal Netherlands Academy of Arts and Sciences, is sponsoring the research through Maastricht University. “This survey is the first of its kind to compare a large sample of patients’ firsthand experiences internationally” said van Os. “Once patients start taking these drugs it can remain unclear if, when, and how to stop. The data from this survey will help fill a gap in the existing research.”

The survey is anonymous and can be found at http://www.antipsychoticwithdrawalsurvey.com. It will also available in multiple languages including English, Dutch, French, German, Spanish, Arabic, and Japanese. Patients and former patients can take the survey with or without the assistance of their doctor.

  • “Adult Utilization of Psychiatric Drugs and Differences by Sex, Age, and Race,” Moore, T., and Mattison, D. JAMA Intern Med. 2017;177(2):274-275.

 

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For a multitude of ideas about how to create a life filled with safe alternatives to psychiatric drugs visit the drop-down menus at the top of this page or scroll down the homepage for more recent postings. 

 

 

 

12 Responses

  1. Brandon

    If you hit the back button the survey is lost.
    Ridiculous. No warning that could happen.
    I’m not taking it again.

    Like

      1. I’m also surprised because I actually closed the page while I was taking it and went back to it a couple of hours late and it had saved my place and that was unexpected…so, wow…again glitches are inconsistent weirdnesses.

        Liked by 1 person

    1. Hi Brandon,

      If you already answered some questions and you click the browser window back button you will leave the site. Your answers are not lost however, as long as your browser is accepting cookies. Just go back to the site at the link http://www.antipsychoticwithdrawalsurvey.com and it will pick up where you left off, remembering all your answers.

      (One note: If you have cookies disabled on all sites by default in your browser settings for some reason, then you can’t save and go back. You can’t leave the site with your browser back button unless there are cookies. Usually browsers are set to accept cookies from visited sites to make the website work properly.)

      There is a go back a page button at the bottom of some pages on the survey, but when answers are branching and conditional on previous questions the go back a page button will not appear.

      Sorry for the frustration, email me if I can be of any help.

      – Will

      Like

  2. David Ruppel

    Actually, Will’s and my “story” are a bit alike, though I’ve been unsupported in my withdrawal, or should I say was unsupported. Frankly, I’m a huge admirer of you both; quite intelligent, compassionate, and sensitive people.

    Liked by 1 person

    1. that would have to be done on your end through gravatar. If you click through to your pic on gravatar and then sign in that should give you access to your account. that’s not somethingI have access to.

      Liked by 1 person

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