by Will Hall, Monica Cassani, and Dina Tyler In the world of innovations in how we treat survivors of psychiatric crisis, Live and Learn Inc and Open Excellence/Foundation for Excellence in Mental Health Care do valuable work. Live And Learn is a research company owned by Laysha Ostrow that collects and analyzes data on the viability of alternative mental health treatments, and Open Excellence/FEMHC is a philanthropy started by patients' family members that channels funding into promising projects. They're colleagues with us in the broader "critical psychiatry" movement ((Will was one of the original founding board members of Open Excellence/FEMHC) and we've all known each other for many years. At the same time, after collaborating with Live and Learn and Open Excellence/FEMHC on a past project, we are left very concerned by apparent ethical irregularities, including possibly crossing the line into research misconduct and plagiarism.
I learned “auto-immune” meant my system was in over-drive all the time because it was fighting real infections. Western medicine says that auto-immune means the body is hurting itself. For me this was untrue. My body was fighting and waiting for me to start cooperating.
Infections that are locked up in biofilm don’t show up on labs. It does not make them any less real. They become much more dangerous because the medical system denies their existence and tells many people with “unexplained” chronic issues that they are delusional. Shameful.
Biofilm encased infections can vary from completely harmless/contained to raging insanity. Pharma in my instance (and the ensuing withdrawal illness) created outrageous opportunistic infections. Stuff in biofilm is, in general, anti-biotic resistant hence chronicity of all sorts can develop.
I’ve never regretted giving up on getting diagnosed. What I’ve learned as an undiagnosed chronically ill person (auto-immune & “lyme disease”…
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