A return from the dead and more on Tardive Dyskinesia (also Lyme)

Why did I mostly stop writing? Because I was dealing with something I no longer knew how to talk about. Mostly because people really don't like reading about disability. All the able-bodied ableists who want to pretend that somehow disability must be the fault of the person suffering from it. Yeah. Lots of my readers too. The comments became unbearable and remain that way. I mostly keep them turned off. I've written a few new pieces on my own idiosyncratic experience of TD. I thought I'd share with you Robert Whitaker's long and well-researched piece. (continue reading, click through)

Intro to Ayurveda (for chronic illness, psych drug withdrawal, TD)

I have gone to practitioners but, Ayurveda, at foundation, is about learning to listen to your body and know how to feed it, move it, rest it and take care of it as needed. That is always our job in the end. I never found a practitioner who could deal with my extreme and multiple issues either. I couldn't even leave my house for 5 years as I was bedridden. I started these practices on my own at home in my bed. I am no longer bedridden. I am no longer nonverbal. I still have tardive dyskinesia and I still love Ayurveda with a profound gratefulness as it helped me be in touch with my body. This is good stuff for anyone in life at anytime. ...

Tardive Dyskinesia is brain injury

Tardive Dyskinesia is brain damage. It is a medically induced (iatrogenic) INJURY caused by 500 different drugs often used in psychiatry, gastroenterology and Parkinsons. People are rarely told of the risk. It's often referred to as a side effect of the drugs. This is offensive. A side effect is not a crippling life long disease... Continue Reading →

Life with Tardive Dyskinesia (Lyme too)

I've posted a couple of times about having TD. It is an awful debilitating, crippling and disfiguring disease caused by iatrogenic injury. I just discovered the National Organization for Tardive Dyskinesia so I thought I would share. There is very little accurate or clear information about this disease. I have avoided doctors mostly as I've not encountered anyone that seems like they would do anything other than harm. Neurologists who treat TD are prone to use psych meds and the MDs I saw mostly shamed and dismissed me as crazy. I did have a psychiatrist who was also a friend diagnose me and it's very clear that I have TD. I go from being physically okay to being able to hardly stand up in the same day. I suffer from acute and chronic pain in my face, head, neck and shoulders. I am often totally unable to function as a result of this drug injury. I've written very little about it because this site was about recovering after coming off psych meds and well, I've got my mental health but I am not well. It's likely I will never be well. My only goal now is to learn how to cope better. As readers of this site know I've exhausted all manner of behavioral and lifestyle healing methods. This is not an easy ride. (click through for more)

New cycle of horror and shock. Depression isn’t caused by low serotonin!

Yes, it's happened again. Mainstream outlets everywhere are decrying this travesty.

the dispossessed

...the farther out we go the fewer we meet who can understand, but we're out here...always...those who trust your experience is just as you say it is...

Thinking about anger

I wrote about anger today when a friend posted elsewhere about how anger is being maligned so that people are marked as characterological defects...she posted something from Teal Swan...a young woman guru who really sticks her neck out... I said: our relationship with anger is gravely and dangerously messed up. It's not really safe to... Continue Reading →

TD updated

I've come to believe that serious microbiome issues (lyme disease) and tardyve diskinesia are essentially the same thing. Such is the experience in my body. I have lyme disease -- with five documented pathogens involved. I have mostly used Buhner inspired treatments. I also have tardive dyskinesia, a collection of debilitating "symptoms" associated with pharmaceutical... Continue Reading →

Invitation to dance…music included

Ecstatic movement has been a critical part of my healing. Ecstatic dance practiced with intent is movement meditation. Below is compilation from my favorite “wave” ever. You don’t need to read anything about it…just start moving to the music.  downloadable audio file here:  allison-watson dj'd this collection If you want to learn more about ecstatic dance... Continue Reading →

Speaking Out About Possible Research Misconduct: Live and Learn Inc. and Open Excellence/Foundation for Excellence in Mental Health Care

by Will Hall, Monica Cassani, and Dina Tyler In the world of innovations in how we treat survivors of psychiatric crisis, Live and Learn Inc and Open Excellence/Foundation for Excellence in Mental Health Care do valuable work. Live And Learn is a research company owned by Laysha Ostrow that collects and analyzes data on the viability of alternative mental health treatments, and Open Excellence/FEMHC is a philanthropy started by patients' family members that channels funding into promising projects. They're colleagues with us in the broader "critical psychiatry" movement ((Will was one of the original founding board members of Open Excellence/FEMHC) and we've all known each other for many years. At the same time, after collaborating with Live and Learn and Open Excellence/FEMHC on a past project, we are left very concerned by apparent ethical irregularities, including possibly crossing the line into research misconduct and plagiarism.

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