I’ve been navigating this world of multiple systemic infections for many years now. The pharmaceutical drug injuries which caused Tardive Dyskinesia has made it a potentially deadly undertaking. Doctors, even ones who can hear me, don’t want to take me on.
Liability and capitalism rules all in their worlds and people like me are left to fend for ourselves. I have watched many people I love succumb to the medical system. It’s been excruciatingly painful. So many dead friends. It started in high school for me!
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I wrote some of this article a couple of years ago for my personal site monicacassani.com. I’ve updated it and edited for what continues now.
This article is about Looking at Parasites, Viruses, Yeast and Fungal Infections. It has good introductory information about treating multiple systemic infections. And wow! Horowitz calls it the way I see it. The name Lyme disease doesn’t touch the complexity of these multiple infections in complex biofilm. This all links more information to my piece at Mad in America. Tardive Dyskinesia, Chronic Lyme Disease, and Infection – Mad In America
From this article at Lymedisease.org, Looking at Parasites, Viruses, Yeast and Fungal Infections:
“In his book Why Can’t I Get Better: Solving the Mystery of Lyme and Chronic Disease, Dr. Richard Horowitz proposes what he calls the MSIDS model. It stands for Multiple Systemic Infections Disease Syndrome and takes a broad look at how many different factors can contribute to persistent illness. In the following excerpt, he discusses several of the factors that can complicate diagnosis and treatment of Lyme disease.“
I’m glad Horowitz is calling this a Multiple Systemic Infections Disease Syndrome because “Lyme” is a distraction. We’re talking systemic chronic infections. They’re likely implicated in all chronic illness.
We are more microbiome than human. Unfortunately our ridiculous medical system is so off base they’ve attached to the very limiting narrative that is Lyme. This means those who don’t test positive for the specific bacteria associated with Lyme are left in desperate straights. Anyone without a lot of money is in desperate straights anyway. Insurance doesn’t cover the kind of dare we need.
There is so much work to be done.
The article is a fairly good “Lyme” treatment overview for beginners and can help people see the difficulties people face. There can be extremely complex presentations and if one has severe pharmaceutical injuries it gets all the more complex. I worked with someone who was a student of Horowitz, the doctor who wrote this article.
This was an MD I zoom called who was simply following protocols set by Horowitz. He couldn’t answer my carefully thought out questions regarding the protocols and ended up firing me. He was explicit about it being because he felt impotent. He acknowledged his limitations while demonizing me too. I guess that’s better than just demonizing me.
It was also obvious I knew a lot more than the doctor being I’ve been at this for 20 years now and all I’ve done is study my body. He admitted his limitations but still ended up gaslighting me. My fate in life, it seems.
MDs really don’t like feeling like they are not the one in authority. …still I’m grateful, 15 years into caring for myself with herbals etc, I have been able to utilize treatments that I didn’t have access to without a prescriber. (2026: those treatments saved my life at that juncture, as herbs have done at others. I did them only as long as my body said it was okay and I did them HOW my body said it was okay. This is one of the reasons the MD fired me. I refused to blindly do it his way. )
Now I know what I need to know about pharma and chronic systemic infections and I’m again on my own.
Doctors are a living nightmare for those of us out on the fringe.
I have yet to meet one that can keep up with me in the Lyme world.
Update: since the initial writing of this post the FDA has finally recognized chronic “Lyme.” As stated above using Lyme as the framework isn’t really that big of a step forward. Until the medical establishment starts actually dealing with humans as we are (a configuration of trillions of micro-organisms, we will continue to maim people in the name of medicine. ~~
see PubMed: “Thoroughly revised estimates show that the typical adult human body consists of about 30 trillion human cells and about 38 trillion bacteria.”) .
More Multiple Systemic Infections:
More on Chronic illness: a kaleidoscopic view ~~ Tardive Dyskinesia
More on Multiple systemic infections
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