Tag: lyme disease

Multiple Systemic Infections: a system wide denial of implications

an image of microorganisms for Multiple Systemic Infections: a system wide denial of implications

I've been navigating this world of multiple systemic infections for many years now. The pharmaceutical drug injuries which caused Tardive Dyskinesia has made it a potentially deadly undertaking. Doctors, even ones who can hear me, don't want to take me on. Liability and capitalism rules all in their worlds and people like me are left to fend for ourselves. I have watched many people I love succumb to the medical system. It's been excruciatingly painful. So many dead friends. It started in high school for me!

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Withdrawal anniversary: 16 years

The last time I did an anniversary post was 8 years ago. It's my birthday too. I was born on this day. So it's been my anniversary and my birthday for 16 years. I'm drug injured and seriously so. I've never regretted coming off psych drugs.

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The hungry ghosts know. Listen.

sunflower for the hungry ghosts

Somatic mysticism, diet and returning to my ancestry…. The hungry ghosts know. Listen. I like using “somatic mysticism” to explain my experience because I feel everything deeply in my body. I can feel my cells doing their work quite often and I feel all manner of metabolic movement and I feel far more than I can even begin to really know from a biological standpoint. Still when I listen and pay attention I collect data, information to act on.

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Chronic illness, pharmaceutical injury

fun design

This is my experience after what, at this point, amounts to thousands of hours of mindful presence with the chaos in my body. ~~ Chronic illness, pharmaceutical injury ~~ One learns when one focuses attention. One learns a whole lot. That is meditation. Focused attention. So, my experience of chronic illness: Chronic illness is the body saying no to the toxic societal structures that we have internalized…healing from chronic illness is healing the whole human shebang. ~~ To be clear healing does not mean curing. There is no cure to this being human. ~~ ....

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Lyme disease / systemic infections

blue petaled flower Lyme disease category page

My experience with Lyme disease is also my experience with dyskinesia. The term "multiple systemic infections" is a better way to talk about Lyme disease. Lyme is always many different infections in longterm, chronic cases. Testing isn't dependable either . This area of study is not well defined or determined at this time. Insurance doesn't cover care and people are in crisis.

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tardive dyskinesia/lyme face: my best looks over the last four years

tardive dyskinesia/lyme face

tardive dyskinesia/lyme face: my best looks over the last four years ~~ These selfies show how I’ve looked for most of the last four years. The condition is severe for about 6 months of the year and then fluctuates for the rest of the year.

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Tardive dyskinesia is an infection

night sky photo for tardive dyskinesia is an infection

It turns out dyskinesia is a recognized symptom of Bartonella, a Lyme disease co-infection. I've been researching Tardive Dyskinesia which is intimately associated with how I experience the Lyme and Bartonella infections. It's generally considered a pharmaceutical brain injury (which I believe it also is and it's why I got the diagnosis, because of my pharmaceutical history) but it seems that the reason it's a pharma injury because it allows infection deep into the brain causing much more serious neuro-lyme. This is not accepted fact in the medical community but it's clear as my experience in my body. Tardive Dyskinesia is brain damage because the psychiatric pharmaceuticals make existing infections far worse.

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A return from the dead

Mimosa tree taken by Monica cassani for Return from the dead

Why did I mostly stop writing? Because I was dealing with something I no longer knew how to talk about. Mostly because people really don't like reading about disability. All the able-bodied ableists who want to pretend that somehow disability must be the fault of the person suffering from it. Yeah. Lots of my readers too. The comments became unbearable and remain that way. I mostly keep them turned off. (2026: I've turned my comments back on these days ... the site is quieter now that I don't engage in social media much) I've written a few new pieces on my own idiosyncratic experience of TD. I thought I'd share with you Robert Whitaker's long and well-researched piece. )

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TD update

dawn with sun TD Update

TD Update: I've come to believe that serious microbiome issues (lyme disease) and tardyve diskinesia are essentially the same thing. Such is the experience in my body. I have lyme disease -- with five documented pathogens involved. To be clear I don't embrace the diagnosis because it's highly problematic. It is helpful in getting some of the care I need.

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Getting healthy means coming to balance (Lyme too)

update: I did test positive for lyme and several co-infections in 2020 I had multiple infections that responded to Lyme disease treatment. I never tested positive for Lyme and gave up on doctors after that. Healing (for me) didn't mean killing off all micro-organisms. It meant bringing balance by moving out excess of the ones... Continue Reading →

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Detox, withdrawal from psych meds and chronic systemic infections (chronic illness tends to be associated with them)

I've been working on detoxification and clearing and opening up my detox pathways for a decade. It's been slow and rough going for all the reasons y'all know about here. Still I have slowly come to tolerate a whole lot of detox herbs etc. I am now actually responding quite well to pretty hard-core Lyme disease protocols ...

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