Speaking to “normals” about our hypersensitivity

Through the years, as a means to survive, I’ve sculpted my social-media so that I don’t have to listen to a lot of otherwise very offensive stuff about the experience of those of us with extreme sensitivities,  and iatrogenic and chronic illness. Still, because I care about some of the folks who continue to say insensitive, ignorant things about us, I do encounter it from time to time. In fact we cannot hide from the ignorance in the world about our experience and still live in the world and so I’m entering a phase of healing and learning that is helping me re-enter the world. That means facing such insults daily. …

Traumatic brain injury/psych drug brain injury (protracted withdrawal) — very similar apparently

I came across an article that’s very extensive and actually quite helpful in terms of tips  and validation about the vast myriad of possible manifestations of injury after an insult to the brain.  It’s written about  the more conventional  traumatic brain injury, you know, car accidents and violent blows to the head.  You will see that  our pharmaceutical brain injuries  are very similar in terms of “symptoms” and I think sometimes we have additional really horrible  strange somatic stuff that defies articulation …

I continue trying to figure out how to be in this world as the freak that I am…

Dear Pastor, Thank you. Frankly my own personal drama is hardly what motivates me anymore. I’m in a highly privileged position with education — I was a social worker working with folks who are harmed in the ways that I now advocate for. I watched people lose everything and not infrequently die due to what is being called medical care. This is not hyperbolic. It’s fact. …

SLEEPING after coming off heavily sedating psych drugs. It gets better.

My sleep has come back slowly. One of the few MDs I’ve worked with who has been helpful has a specialty in sleep medicine. When I met him I was lucky if I slept one hour a night and I didn’t tolerate anything (supplement or psych drug wise) to help support sleep…he assured me that what he called my “sleep architecture” would come back…(he also is familiar with the sort of iatrogenic brain injury we get from the psych meds) … in any case his words stay with me even now and I have a palpable sense of my body reconstructing my sleep architecture over time…now I can take a few supplement supports and herbs as well…but time, also, really continues to matter. I went from 0-2 hours a night (a few years of that) to 2-4 hours a night (a couple of years) and now I’m at 4-6 hours and occasionally sleep 7 or 8 hours…it’s been a trip! I continue to heal. … [click on title for the rest of the post]