This sort of illness tends to be an up and down sort of thing. It can be very difficult to deal with and unaffected people rarely understand. I lately had a serious setback and I've learned it's not very pleasant to even talk about because people want you better so badly that they will invalidate the very real difficulties that we face all the time. … [click on title to read the rest]
Update 2026: as a piece of internet history I will remind folks that in 2009 we were only beginning to understand what the internet could do. at that point the networking that was happening had never happened before and it was thrilling. I found this written by a woman name Ricky Buchanan. I've discovered by... Continue Reading →
It's potentially dangerous to come off psychiatric drugs rapidly. For guidance in safer withdrawal methods see here. You think maybe something wasn’t quite right? This journey started the summer of 1985 and is about to end this summer of 2009. I have been withdrawing the past 5 years. Nothing ever did work and in retrospect... Continue Reading →
For those of you on the west coast I'm posting this just after midnight on the east coast, so today is Sunday. My birthday is tomorrow. I have been pretty much crippled with pain and nausea the last few days. I have not been able to eat or spend anytime out of bed. Every time... Continue Reading →
Update 2026: This post predates my learning more about the importance of slow, methodical withdrawal. I started withdrawing when the online scene was just learning what was possible! It's hard to believe how many voices are out there now. This was first posted in 2008. The internet was brand new , really and totally different than it is now, both. This site was where people went for withdrawal info. Here and a few forums and/or email groups that are mostly all gone now. Given that I didn't yet know how protracted my situation would be I was still looking for professionals to work with. I did find a few gems but ultimately learned that my journey would be one of learning to trust mself and listen to my body. Nature would be my primary guide. So what's happening in my journey lately?
atrogenic illness caused by mitochondrial damage---psychiatric drugs major culprit An interesting abstract to an article: (The pdf is available for download below)
Thank you to Marissa, author of "depression introspection" for pointing out this article on chronic fatigue from the New York Times, because yes, my previous post is all about what this article is talking about. For exactly the reasons stated in this article---the fact that people just don't get what chronic fatigue means, I rarely... Continue Reading →
I'm tired. I can't drive except for very short distances and even that scares me---my freedom feels severely impeded. Sometimes my body feels like lead and I lay in bed for hours. Literally like lead and it even hurts my arm to hold a phone to my head or type on the keyboard. I'm tired.... Continue Reading →
My last personal update was tentatively optimistic. I don't like posting when I feel like shit, but frankly, I feel like shit most of the time. I am chronically ill. That's it. I said it. I have a chronic physical illness. It's no joke. It's seems undiagnosable and all I can attribute it to is... Continue Reading →
Traveling any distance either within a time zone or out of one has become extremely difficult for me since about 6 months into my withdrawals and increasingly so. I don't really know why, but I stop sleeping and get all out of sorts. I've pretty much been out of commission and hence my presence on... Continue Reading →
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