What is Endometriosis…

Update: 2013. The below post is from 2007. I’ve since healed (functionally cured) my endometriosis: Endometriosis? Mine responded to natural care. Here I email the MD who mocked me when I refused her “care”

The real disease I deal with.  I thought some of you might like to know more as most people don’t know what it is. Frankly I’ve spent little time understanding it myself even though as I’ve begun studying now it seems I have what is called Stage 4 endometriosis, the most serious you can have. I have severe pain several days a month now. Endometriosis is NOT run of the mill menstrual cramps. It is much much worse. To put things in perspective though, I do not have it nearly as bad as some people do. Some people have debilitating pain every day of their life. I’m not there yet. I just have it about a week a month.

My periods stopped while I was on high doses of Risperdal and I didn’t have to deal with the Endometriosis for many years.

I have been having increasingly painful periods for several years now since I got below 4 mg of Risperdal.

All the medicinal treatments for Endo are horrible and cause psychiatric problems for people who are sensitive, so I cannot take any of the western medicinal treatments.

I’ve begun treatment with an acupuncturist and hope for the best. In the meantime sometimes I get really bummed out because it seems I will never be well.

I am however researching as many natural alternatives to care as I can, since once again Western Medicine fails me and has nothing for me but surgery. I will not hesitate to have surgery again once I’m strong enough, but my body is so weak now it would be a big mistake. I hope that in the mean time I’ll learn to heal myself. I’ve had surgery twice already as a young woman before taking the Risperdal.

Here from a website called Endo Resolved is a description of what Endo is:

SO WHAT IS ENDOMETRIOSIS AND WHAT DOES IT DO?

 

About Monica Cassani

Author/Editor Beyond Meds: Everything Matters

13 Responses

  1. Sherry

    gianna,
    Have you researched endometial ablation? A woman I know here in NH had it done in PA. She refused to go through a hysterectomy. The condition improves at menopause but if I weren’t willing to wait that long (and I probably wouldn’t be), I’d definitely look into ablation.

    My mother was born in 1920. She had a terrible time with cramps, so her father gave her a small vanilla extract bottle with whiskey in it. We Irish set great store in the medicinal powers of whiskey. When the cramps would hit, say at school, she’d go to the girls’ room and take a slug of whiskey. I can only imagine the ruckus that would be raised nowadays with such an approach. No, no–heavy, expensive drugs, that would be the response.

    A month can seem a short time, indeed, when you’re dealing with something like this.

    Best wishes,
    Sherry

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  2. Gianna–

    I had endometrial ablation done a few years ago–for heavy periods, rather than endometriosis–and it was a pretty quick deal. I had a bit of cramping the next day, but other than that it was not uncomfortable. It’s a laproscopic procedure where they inflate a “balloon” inside the uterus and circulate water that is hot enough to kill the uterine lining through it…but while it would take care of what’s actually in the uterus, I don’t think they can deal with the stuff that’s already found its way into the pelvic cavity that way.

    One drawback, however is that once you have the procedure, it is unlikely that you would have enough of a uterine lining left to carry a baby to term…I waited until I was sure I was done having kids to have it done.

    I’m sorry that you have to deal with this on top of everything else. I have a friend who deals with it, and as the article above says, it can be extremely debilitating.

    I hope you are able to find some answers that work for you. The accupuncture sounds like a good place to start.

    Hugs,
    Jazz

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  3. I needed t see this today.
    The last few days the flow has been so heavy and I am in so much pain, passing clots the size of silver dollars.

    This has been going on for awhile now, and because of my meds and near death experience this Spring, my periods are now averaging about 15-16 days a month…..

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  4. Gianna,

    I have had friends with endometriosis and so I know how painful it can be. I am so sorry that you are having to deal with it. It makes my piddly little whining about peri-menopause seem ridiculous!

    You are in my thoughts!

    Tamara

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  5. I saw the gynecologist back in July. She suggested a D and C. I had one several years ago for the same thing. It helped for a bit, but then it was back to the painful periods and what not.

    I have never heard of endometial ablation, but if it is what Jazz says it is, I won’t consider it because I still want the option of having children, even though that time is almost done.

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  6. Thanks so much for writing this. I have endo and started an endo support group over a dozen years ago. I’ve had 2 laproscopic surgeries, 6 months of depo lupron, 1 yr of depo provera, and many years of bcps. My ovaries are often unhappy and I’ve had chocolate cysts rupture.

    Mine went long undiagnosed b/c my pain was all the time; it wasn’t specific to my period. Treating it was just as awful with the horrible weight gain due to the depo injections. (Add to that the psyche med weight gain and I am a walking billboard for pharmaceuticals and Weight Watchers.)

    My endo now is tolerable, however I can have monthly rectal bleeding due to endo invading growth. I am refusing another colonoscopy, because the source is known and the times specific.

    This disease is life-altering. As above in comments, even when you explain it, people don’t understand.

    I recommend the Endometriosis Association and membership to your interested readers.

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  7. Sherry

    Yes, I’d forgotten that little business about it destroying your endometrium (du-uh!). Sounds as if you’re about as on top of it as a person can be.

    We all have problems with anesthesia in my family. And the docs NEVER listen. After the harrowing experience is over they always tell us “Don’t ever let anyone give you X medication again.” They never seem to hear us reply “But, doctor, I told you about his problem BEFORE you gave me X because the last anesthesiologist told me ‘Never let anyone give you X medication again.'”

    I’ve come to the conclusion that anesthesiologists make psychiatrists look open minded. I often wonder what kind of personality would take up a profession that involves putting people to sleep all the time. Talk about a power trip!

    Oops, I seem to have wandered off topic here, bigtime. Sorry.

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