there is so much supporting evidence about what I'm saying about tardive dyskinesia, psych meds and systemic infections..... this is the latest... in Nature magazine: How SSRI antidepressants help bacteria resist antibiotics!! if you don't know what I'm taking about see: Tardive Dyskinesia, Chronic Lyme Disease, and Infection – Mad In America Here are my... Continue Reading →
It turns out dyskinesia is a recognized symptom of Bartonella, a Lyme disease co-infection. I've been researching Tardive Dyskinesia which is intimately associated with how I experience the Lyme and Bartonella infections. It's generally considered a pharmaceutical brain injury (which I believe it also is and it's why I got the diagnosis, because of my pharmaceutical history) but it seems that the reason it's a pharma injury because it allows infection deep into the brain causing much more serious neuro-lyme. This is not accepted fact in the medical community but it's clear as my experience in my body. Tardive Dyskinesia is brain damage because the psychiatric pharmaceuticals make existing infections far worse.
Why did I mostly stop writing? Because I was dealing with something I no longer knew how to talk about. Mostly because people really don't like reading about disability. All the able-bodied ableists who want to pretend that somehow disability must be the fault of the person suffering from it. Yeah. Lots of my readers too. The comments became unbearable and remain that way. I mostly keep them turned off. (2026: I've turned my comments back on these days ... the site is quieter now that I don't engage in social media much) I've written a few new pieces on my own idiosyncratic experience of TD. I thought I'd share with you Robert Whitaker's long and well-researched piece. )
2025 update: this is an early piece on TD. It took me many years to know how to talk about this. I wasn't diagnosed for several years and just thought the movements and jerking around were part of the psychiatric drug protracted withdrawal issues. I've experienced TD very much in my own way and written very little to date because I've been learning to work with it without the noise from Western Medicine telling me to take even more neurotoxic drugs.
TD Update: I've come to believe that serious microbiome issues (lyme disease) and tardyve diskinesia are essentially the same thing. Such is the experience in my body. I have lyme disease -- with five documented pathogens involved. To be clear I don't embrace the diagnosis because it's highly problematic. It is helpful in getting some of the care I need.
2025 update: Tardive dyskinesia - iatrogenic injury, neuroleptics. ~~ This was the first post I wrote about this drug injury. I lived with it for several years before I had the words and understanding to even begin to talk about what had happened to me. I have tardive dyskinesia. I've not written about it. I can't find a single reference online about it that doesn't pathologize it..and DRUG it further.
2025: Actually I do hide quite often these days. I have tardive dyskinesia (iatrogenic injury, infection and brain injury), often referred to as a "movement disorder." Calling it a movement disorder is extremely misleading. It is much more than the visible movements that people can see. It is often excruciatingly painful and it can be crippling. I sometimes cannot walk. I often cannot speak. I hide because people are cruel to those who look strange or odd. I have been tending to my body for a long time so there are times when it's not visible and that is when I venture into the world. At home I am often nonverbal and sometimes a fall risk. Night time is when the "movements" get really bad. Tardive dyskinesia can cause freezing as well as a lot of "movement." Anyway. The healng process continues and it's clearly moving in the right direction and everything I just said is also true.
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