update: I did test positive for lyme and several co-infections in 2020
I want to get this inquiry out there with folks in withdrawal chaos… so that we might find one another if there are others discovering what I’m getting into now.
I am cutting and pasting from two different places now:
I’m sharing this because I’m trying to find folks who may resonate from the withdrawal communities. …this is something I posted on surviving antidepressants in the withdrawal community because I don’t think I’m alone. I want to network with any of us who are dealing with similar long-standing infections and may not realize it (and with those that do as well!).
I am not available for much one on one support...I’m interested in collecting data and info from our population for the purposes of sharing and learning so please be aware of that as a limitation I have.
Lyme disease, anyone?
I’ve been working on detoxification and clearing and opening up my detox pathways for a decade. It’s been slow and rough going for all the reasons y’all know about here. Still I have slowly come to tolerate a whole lot of detox herbs etc. I am now actually responding quite well to pretty hard-core Lyme disease protocols (Stephen Buhner’s work as inspiration) … however I had sort of accidently put together half the protocol before I realized that the Lyme’s folks were doing the same thing.
of note: I did NOT test positive for Lyme. this is not considered unusual from what I’m learning…even among folks who have it.
So I never pursued this earlier (though I certainly noticed that I had lots of common issues with the folks in Lyme communities)…thing that is becoming clear however is that I have very deep pockets of BIO-FILM with multiple infectious agents involved and for a time heavy metal too. I seem to have largely gotten the metal out…but I clearly still have some very deep and nasty bio-films that I can now treat with this modified variation of a lyme protocol (along with my own design which was happening before I connected with the Lyme community)
I have no idea if I have Lyme…I know I have infections that act like Lyme, however and it was a detox issue that landed me in the ICU in December of 2017 though at the time I did not get explicit about that because I was still figuring out what had happened. Detox is difficult and even dangerous with some of these intense BIO-Films.
anyway…if anyone has experience that might help us figure out what is going on for those of us who do, indeed, remain ill a long time and also have a lot of infections please share below your experience.
Remember we do not give unsolicited advice here…we share our experience.
updated note: if people want to comment please be specific about what I’m requesting…if you’re healthy this is not the place to brag about it. thank you. I’m actually deleting the comment that was doing that…I really can’t for the life of me figure out what the motivation for such a comment was. (response to that person: we aren’t looking for diseases nor is this how any of us would like to be spending our time…we’re dealing with crippling illness from the drugs and doing the best we can to recover. we remain fringe and maltreated by other psych survivors because we’re not even believed by our own population…and yet there are thousands of us.)
ALSO SEE: A few of my favorite books about herbs…
This is the book by Stephen Buhner there are many others that look interesting too.
AND yes, I could use some compensation for the many 100s of hours I’ve worked with folks over the years. Working like we do and not getting any sort of compensation that I might live more comfortably in the face of continued challenges continues to teach us what we’ve learned from psychiatry. We must not be worth it. Let’s change that patterning. If I helped you or a loved one out, please help me back now. thank you.
****We could use some financial support at the moment! You know, for things like the mortgage so that we can maintain a roof over our heads. Yup. I do this all for no other compensation than avZ what the readers want to offer in support. Thank you!****
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